Feelings! Men don't talk about their feelings! We drill holes in stuff, dig bloody big holes in the ground, fix broken down cars and have sheds full of power tools! Pffft, feelings.
When Em asked me to write an entry on her blog from a blokes perspective about having a wife battling breast cancer, I was a little apprehensive. Writing about it means I have to come clean with her about what I really think and how I really feel. Not sure I am comfortable doing that but we'll see how we go.
Why don't I start at the beginning. The 16th of June 2011 was a date that I will remember forever. I was at work and on my mobile when I could see Emma trying to ring through. At first I ignored it, thinking I would simply call her back when I finished this call but then I saw her try calling through again. It was then that I remembered she was getting her pathology results from the lump she had found a few days earlier. I suddenly had a very bad feeling this was not going to be good news. I cut the call short and phoned Emma back straight away. Just as I suspected, it was bad news. Malignant breast carcinoma! Em was understandably distraught and I did my best to console her over the phone before telling her I would leave work immediately and come straight home.
When we finally met with the surgeon for the first time, after what felt like the longest weekend of our lives, it all started to hit home. They'd actually found four separate lumps (turned out to be three after the surgery) and he advised that mastectomy was the only option available. I remember looking at Em when he said that word; mastectomy. I was surprised at how well she seemed to take it. I don't remember her tearing up at that point but rather asking several more questions. It was not until he advised her she'd need to undergo 4-5 months of chemo. That's when the tears started to flow. Something about that word; chemo. The Doctor handed Emma his tissue box, strategically placed on the corner of his desk and I remember thinking geez, he must go through a lot of those!
Suddenly, I'm a damn breast cancer expert! I'm using medical terminology, some of which I'd never heard of before. HER2 negative, ERPR positive, DCIS, BRCA2 gene, lumpectomy, mastectomy, mammogram, FNA, core biopsy, axillary clearance, chemotherapy, radiation, the list goes on. In addition, I'm being told not to drink the water out of our taps. Not to eat the meat in the supermarket. Or the fruit, or the vegies. We need to switch to a fully organic diet. Why didn't I know about this before this breast cancer news and why isn't everyone worrying about this stuff?
So what do I tell my girls when they ask what's wrong with Mummy? Do they understand? Do they really know what their Mum is going through? What do I say to Jazzy when she says one of her little pre-school friends said she doesn't like her Mums hair? How do I help my wife, the woman I love, the mother of my children? I'm not a doctor! What the hell do I say when she tells me she had a dream about dying again last night? When she says she feels like a ticking time-bomb? When she cries, out of the blue, just sitting on the couch watching tv or doing the dishes? When she tells me she's petrified this cancer will come back, and she doesn't want to miss out on seeing our girls grow up? Watch them get married and have children of their own. To tell you the truth, I've been making it all up as I go. Absolutely winging it! I really don't know if the answers I have provided were right or wrong, but ultimately, I have just tried to keep as calm, realistic and positive as I possibly can.
So back to my feelings. Of course all blokes have them. But in this particular case, just how much should I share with you? Before writing this paragraph, I wrestled with my thoughts of what might come of it if I was to write about the reality of this disease potentially getting the better of Emma one day. Finally, I asked her what she would like me to do and she answered with a rather matter-of-fact kind of response, that all I'd be doing is being realistic and that I should write about it.
I have really only thought about the possibility of Em not beating this cancer once. We were in the surgeons office after her second round of surgery and he was giving us the 'stats'. Em was given only a 35% chance of surviving this cancer if she chose to do nothing further, after her two lots of surgery. For me, that was a significant moment. My thoughts immediately turned to my two little girls. What the hell am I going to do if Em is not around anymore? How will I raise them on my own? How will I work? Pay the bills? Teach them to be good, kind and considerate young girls? Talk to them about 'girlie' stuff when they become teenagers? STOP! That sort of thinking doesn't help anyone! I don't think like that anymore. It is all positive now and I love her so much that nothing I picture in my future doesn't include her in it!
As horrible as it sounds, I just keep thinking that we are still better off than many others out there in the world. Some people don't have the opportunity to 'cheat' death. When their number is up, they could be hit by a car tomorrow. I feel like we're actually very lucky to have been given an opportunity, by the powers that be, to fight this cancer. We know where we stand and what we have to do to beat it.
To those of you who know Emma well, you'll agree with me when I say that Em is one of the kindest, happiest, most caring and thoughtful people you're likely to ever meet in your lives. The world would most certainly NOT be a better place without her in it! She is always smiling and has an infectious, bubbly personality that I have always admired about her. I just wish I could protect her from this and make it all go away. That's what this all comes down to. As her husband, I feel the overwhelming need to 'protect' her and I struggle with the realisation that much of this fight is Emma's and Emma's alone.
We don't sweat the small stuff anymore. We enjoy spending family time together. Every now and then, when our girls are playing together or being extra-specially cute, Em and I often look at each other and, almost like we can read each others minds, we just have that overwhelming love that any parent has for their children. Those are the moments that I cherish most. They are family moments. Mum and Dad moments that I want to continue to have for many, many years to come. With Emma, by my side.
As Emma has mentioned several times already in her blogs, the support from our family and friends has been unbelievable. From our parents, Em's sister Liz and family (Liz shaved her head with Em - what an absolute bloody legend!), our close circle of friends, Emma's work colleagues and the Pre-Primary School Mums (and Dads) who have all played a part, in numerous ways, to help us deal with this situation. Not to mention the fundraising on her behalf by Organic Home with the "Think Pink for Emma" candles and also Birdy, Goona and Benny and their "Shave for Em" evening. People have just been amazing! How are we ever going to be able to repay them?
If I can offer any advice to those reading this right now, it would simply be to 'stop and smell the roses' people. Don't worry about what you don't have, enjoy what you do have.
Love you babe!
27 comments:
ps - I'll be in the shed drilling a hole in something if you need me...
amazing. your little girls are so lucky to have such loving and beautiful people as parents. x
Well written mate, I'm glad you have been able to express your feelings, I know how hard it would have been for you to do so. Both Emma and yourself are an inspiration. Much love from the other Taylors.
I found this blog by Googling Peter & Arlene. They are also treating my wife, Denise. I think we saw you guys in the waiting room on June 30.
We are running about a month ahead of you in the treatment plan. Like you, we've got two young kids (6 and 4), and yes the single Dad thoughts are indeed the darkest.
You are right to put those thoughts out of your head though. The treatment stats are in our favour, and our wives are being looked after by the best in the business.
In the meantime, we just have to focus on the small positives cancer has to offer - free food, more flowers than you can poke a stick at, kinky bald head. It ain't all bad!
Anyway I wish you guys all the best, and maybe we'll catch you one of these days in one of the waiting rooms.
Thanks for the comments Greg. Wishing you and Denise all the best also! And yes, might see you in the waiting room next time around.
Cheers,
Ryan.
My 'best husband of the year' vote definitely goes to you Ryno!! Ton x
How beautiful! That got the tears flowing xx Zoe
Em, you have an amazing hubby by your side! Well written Ryan!!!! Hope you guys had a good weekend. Sharm X
Pass the tissues please! Em, you have an amazing husband. You are very very lucky. Ryan you are a pillar of strength and as brave and inspirational as Emma is. Whilst I'm sure everyone reading this doesn't envy what you guys are going through, we all envy the wonderful relationship you have and the love you have for each other, this alone will get you through this xo love you guys xo love Kym xo
You're a good guy, Ryan. :-) Reb
Bloody hell....I can't read these blogs without the tears flowing, uplifting and sad all at the same time!! Ryan, what a fantastic husband and daddy you are. Thoughts and prayers are with you Emma....keep fighting. Julie Corcoran xxx
Pass me the tissues.... Just beautiful! Kyles Baldacchino x
Good job Ryan! And thank you. I'm off to smell the roses now. :) Kym x
Em your so lucky to have an amazing husband and family to help you thru this mad crazy world. Always thinking of you. Belinda
I am at work tears flowwing. Bloody hell Ryan. What an amazing pair you both are!!!! Gail
love you all, xxxx Dave and Col
Holy crap, I have tears rolling down my face. Em, what you and Ry have is very special, a love so stong and tight that you can fight anything together and know that you are always by each other sides holding each others hands. I know that this strength you two have will get you through this, keep thinking positive and keep loving each other just as much. Always thinking of you, Ry and the girls. Love Jen Ambridge xxxx
What an honest, emotional, positive and beautiful blog. Smelling the roses should always be a priority in all our lives. Em, may you both smell the roses with your beautiful girls for many many many years to come. Deb Sands xx
Just beautiful!!! Fiona Bruce
Righto Ry .... are you out of the shed now so you read this post?? Firstly, I'd love to stop and smell the roses but it's hayfever season and me and flowers don't agree so that ain't happening! Secondly, tell Jazzie that if her friend says she doesn't like Em's hair again then tell her that Aunty Lizzy will be down at the school having words.... okay, serious now - great blog, considering the subject matter I could have been a bundle of tears but by miracle I didn't cry (okay - maybe one tear!).... I think that just goes to show how much strength and positive energy you guys have and how a bad / sad diagnosis only makes you stronger. You are both an inspiration to all of us and especially other fighters out there. Em will still be here in 50 years time Ry.... probably feeding you, showering you and most importantly wiping your ass. :) Lizzy x
I can't say this enough. Both your strength and positivity put together is unbreakable. You are such special people, nothing will bring you down. Keep fighting......Team Taylor!! Jodes x
Thanks for your honesty Ryan, you guys have such an amazing relationship...something many people search their whole lives for...that love will surely get Em through this...x Lou x
Wow you are both an inspiration. Ps Ryan you are meant to give warnings that there may be tears - im at my desk at work bawling!! x Kirsten
Wow, well done Ryan you are so right its time to stop and smell the roses. Big hugs to you Em am thinking of you xoxo Kristen x
what an amazing and inspirational family xxxxxx Audra
Thank you Ryan for putting so many things in perspective. Em, I hope you are feeling OK after chemo. Keep up the great fight and positive attitude xxx Rebecca Cox
Such a well written piece Ryan! So glad you guys have reached the halfway point. You are never far from our minds, even up here in Darwin. xxx Leah Hales
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