Friday 19 August 2011

Hair today, gone tomorrow :(

Since my last diary post I am happy to report that things have improved...  well kind of!  Unfortunately it took close to 9 days for me to start to feel better after my first Chemo treatment, which was a lot longer than I had expected.  I suppose it didn't help that I picked up tonsillitis from Baylee along the way - which has since progressed into a bad cold!  Seriously when it rains, it pours :( After seeing my Dr it was decided I needed to take a good dose of antibiotics in order to improve my health in time for my next Chemo treatment which is next Wed 24th Aug.

With the Chemo sickness behind me (for now!) I started to count down (or should I say, dread) the day when I would lose my hair.  It might sound vain but the thought of losing my hair really frightened me.  I have had long hair for as long as I can remember and I take a lot of pride in looking after it.  To some it may not seem like such a big deal, but to me it was.  In fact, the week leading up to day 17 (D Day, when I was told my hair would fall out) my dreams would always be about losing my hair!  Well I didn't have to wait long.  I had a shower late on Wed 17th Aug (day 14) and whilst washing my hair I could see it falling out :(  It had started and it was terrible!  I gently towel dried it after my shower and was very reluctant to brush it but knew it had to be done - I would just be kidding myself if I tried to hide it!  It was a very surreal moment and I called Ryan into the bathroom to show him what was happening - he couldn't believe the amount of hair that was sitting in our sink.  He often whinges about the odd strand (or 3) of hair I might leave in the bathroom sink but this was really going to shock him! It was all happening so quickly!  I had a good cry with him - losing my hair made everything seem real again :(  He suggested we shave it straight away but I wanted to wait.  The reason for this was that my beautiful sister Lizzy told me a couple of weeks earlier that she wanted to shave her head with me!!! Her way of showing her support for what I was dealing with. I honestly couldn't believe it and had a good cry when she told me - what an amazing thing to do! Anyway, we shaved our heads last night and had lots of laughs along the way. There were no tears (what a relief), I needed a good laugh.  I have posted some pics below of our 'before' and 'after' looks and I can honestly say I couldn't be prouder of my sister Lizzy.  She is so amazing and I love her very much :)  Such a special thing to do and I will be forever grateful for the sacrifice she has made to help and support me through my journey.  We also have some wonderful friends shaving their heads (and raising lots of money for charity) next Friday evening and I am really hoping I feel well enough to see it all happen in person!  I will post some pics of this night too on my next blog entry.  Again, I am blown away with everyone's support and generosity.


Lizzy also gave me a very special little book a couple of weeks ago called 'There's No Place Like Hope' and it is a wonderful read.  It has really helped me these past few weeks and I am often referring to it for various reasons.  I can relate to so much and I wanted to share a few things with you that stuck a chord with me - all relating to my hair (very relevant at this time):


'The fear of losing your hair, along with actually losing it, is truly worse than having it gone.  I would have never believed it, but it is true'


'The next person who carelessly says 'it's only hair' , ask them to share the experience of baldness with you!'


'Hair loss allows our illness to enter the room before our name.'


'When I lost my hair, my eyelashes and my eyebrows , I felt as if I was being erased'


Unfortunately my treatment won't be over when Chemo finishes.  I have to endure 5 weeks (5 times a week) of radiation therapy.  I met with my Radiographer during the week and she is lovely - phew :)  I was really hoping I wouldn't have to have this treatment but my medical team decided this was the best course of action.  I will definitely be taking their advice but it just means this will take me into 2012 - such a shame, I was hoping to start the new year a little differently!

We have also been receiving lots of delicious meals from our wonderful friends.  Thank you again for keeping us well fed and saving me the trouble of preparing and cooking a meal - we greatly appreciate all of your help!  Thankfully I haven't put on much weight since starting my Chemo.  My medical team advised that I should expect to put on a few kgs over the coming months.  I was quite shocked to hear this as I always thought you lost weight whilst on Chemo.  Apparently this isn't quite the case with the treatment I am on, primarily due to the steroid injection they give me to assist with nausea - it makes you very hungry!  


Well on that note I will sign off for now but at least I can be assured of no more bad hair days for a while ;)





BEFORE - Lizzy and I 


Me holding my pony tail - a little sad although quite liking my 'interim' do!


Stevie looking on as I show off my new 'do'!


Lizzy's turn - I got the honours of chopping off her pony tail!


Bye Bye Hair - Day 15 (Thursday 18th August 2011)


Lizzy and I showing off our new looks for the camera!



Getting used to wearing our scarves

17 comments:

Lizzy said...

Oh Em... I knew losing your hair would be hard and there was no way I was going to let you do that by yourself!! Had a blast doing it together - who'd of thought shaving our hair off would be so much fun!! Went to the park today and felt so fabulous with no scarf on and playing with the kids - a very liberating experience...love you lots and looking forward to 2012 and hair re-growth and good health! xx

Anonymous said...

You still look absolutely beautiful to me babe! Luv ya! Ryan.

Anonymous said...

You look amazing, hair or no hair, and your sister is just as amazing to do what she did. You are beautiful people, and beautiful and wonderful things will happen for you - even though it seems tough now. Thank you for sharing your story.

Rachael Quinn said...

You both look absolutely gorgeous!! Loving your blog Em! Your strength radiates through the screen!

Unknown said...

Emma and Lizzy - there is no better friend than a sister to understand what you're going through! These three sisters are sending you our love and best wishes from Shanghai, Scotland and Brisbane. xxx

Love Fiona, Ann and Emma Reilly

Anonymous said...

Love it Em - great pic's!!! Glad you like the book I bought - thought it might help. xx Lizzy

Anonymous said...

As always, another moving blog Em. You two both look fabulous and are so brave. Can't wait to see the boys join you on Friday night. They are definitely not going to look as wonderful as you two. Sach xx

Anonymous said...

Em, firstly can I say how truly inspiring you are. Each time I read your blog updates i get quite teary. What you, Ry, Jaz, Baylee and your family are going through is extremely heart wrenching. My thoughts are with you constantly, you truly are inspirational!!! Xx
Nicole Lord

Anonymous said...

Well...... Firstly, you both look gorgeous!! Secondly, your 'interim do' definitely suits you (potential hair style for 2012 perhaps??) And last but not least, you truly are amazing Em! Sharm X

Anonymous said...

LOVE IT!! You both look beautiful xo Kym Oakes

Anonymous said...

Absolute sisterly love and devotion. Lizzy your a legend an Em, a real inspiration. You both look stunning! Bring on the bling and you will look a million bucks with those scarves....nice stylin. xxx Jodes

Anonymous said...

Em you are just beautiful xo Kristen xo

Anonymous said...

You both look absolutely gorgeous!!! Liz, what a wonderful selfless thing to do....legend. Emma you are a total inspiration...just amazing. Our thoughts are with you all. Love Julie Corcoran xxx

Anonymous said...

Absolutly speechless!! Your sister is amazing and you are both rockin the new fresh looks! Stunning girls and totally inspirational !!! Mel Caldwell x

Anonymous said...

You still look beautiful Emma, a beauty that eminates deep from your beautiful soul. Previn

Anonymous said...

What a wonderful sister you have! You both look beautiful and I love the scarf pic! xx Rebecca Cox xx

Anonymous said...

What an amazing sister you have :) give her a big hug for me! touched my heart too. Jac De Souza xxx